Date of Award




Document Type


Degree Name

Doctor of Philosophy (PhD)


School of Social Welfare

Content Description

1 online resource (ix, 239 pages) : illustrations (some color)

Dissertation/Thesis Chair

Philip McCallion

Committee Members

Anne E Fortune, Matthew P Janicki


decision-making, developmental disability, disabilities, family caregiving, intellectual disability, sibling caregiving, Brothers and sisters, People with mental disabilities, Caregivers

Subject Categories

Social Work


Sibling caregivers comprise a population of increasing significance to intellectual/developmental disabilities (I/DD) policy and practice. As persons with I/DD and their caregiving parents age, more families are relying on adult siblings to provide care. Today, 70% of persons with I/DD live with family members; estimates indicate that up to 20% may reside with siblings. Sibling caregiving has potential to meet some of the growing social need for later life care of individuals with I/DD. However, the needs of siblings providing care are often not addressed by the service system. Inadequate knowledge about how siblings come to be caregivers and their caregiving needs hinders efforts to assist siblings who are providing care or considering whether to assume care.

Included in

Social Work Commons